Fight with Jasper--Fight for a Cure

We will never forget the day that we received the news. Our world shattered when last summer we were told that our sweet Jasper had DIPG (diffuse intrinsic pontine glioma) a terminal brain cancer, primarily affecting children.

Jasper, now 5 years old, is full of love, life and laughter. He loves spending time with his family—especially his older brothers. He loves being silly and his giggle fits make everyone laugh. He is obsessed with Spidey, trains, airplanes, building forts, and creative dancing for the family. He is hoping to play tee-ball in the Spring.

We never thought we would have a child with cancer. We were devastated to learn there is no cure for DIPG. How could that be with all the supposed advances in medicine? We were told that beyond radiation there was no standard of care for DIPG and that we should focus on making memories. As we talked at length to his doctors, we were so discouraged to know how few clinical trials were available for our son, especially at one of the best children’s hospitals in the country. Of the clinical trials that existed, most were full, far way, or for older children, and only in stage one.

After careful consideration, we enrolled in a clinical trial that has shown to give time to patients but has not proven to be a cure. We pray for a miracle and try to be optimistic that the clinical trial medication will give Jasper enough time for a cure to be discovered. 

Each day with Jasper is a blessing and a miracle and we treasure every moment.

DIPG went decades without researching, but in the last few years more effort than ever has been made to find a cure. Our hope is that a cure for DIPG will be found soon--for Jasper and all the other beautiful children affected by this cruel disease!

Donations will be primarily used for Jasper but may also be used to support other children & families in the fight and research for a cure. Thank you!