On 12/13/2024 Our sweet Abigale was diagnosed with an inoperable, terminal brain cancer, DIPG. Diffuse Intrinsic Pontine Glioma. Within a few days, Abby had lost her ability to walk independently, barely able to talk, and was not able to swallow without choking unless given bites of food smaller than your fingertip. Abby underwent 30 rounds of Proton Radiation to the brainstem, participated in a clinical trial and later was approved for the Expanded Access Program of the newly FDA Approved Onc201, Modeyso.
Abby had great success with the Proton Radiation, as it shrunk her tumor about 50% and she was able re-gain all of her abilities and returned to normal daily living, like school, playing and just getting to be a child! On 10/14/25, her symptoms re-appeared within a few days. She had an MRI, with the results being either Radiation Necrosis or possible tumor progression. She went back on Steroids and started Avastin treatments to lessen the symptoms and this seems to be helping, however she is still having some difficulties and is unable to completely wean from the steroids at this time.
We have put this off as long as we could, however we are now needing more financial help. There are several holistic and alternative treatments that are out of pocket and pricey that we are interested in pursuing, as well as her already astronomical medical bills. Her doctor has given us a timeline of a "few months at the most" and while we refuse to accept that and believe in a earthside healing miracle, we are also painfully aware of the expenses we may have in the next "few months." We just want to be prepared ahead of time and not drowning in financial stress during this very hard and unpredictable time.
Donate, share, and most importantly, PRAY! With love, The Alexanders
Donations made to Tough2gether Foundation are tax-deductible to the extent allowed by law. While funds raised in connection with this family will directly support them, all donations are made to Tough2gether Foundation and may also be used to support other families facing pediatric cancer, related programs, and charitable initiatives at the Foundation’s discretion.
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